Kids with "exceptionalities" (learning , physical, emotional and mental disabilities) often are either held back or made to feel they just sometimes cant do what others can.
My nephew is the first autistic person to compete and finish Gravel Worlds.
This kid (he is around 11-13 mentally) is an extremely hard working young man and we couldnt be more proud.
Seeing the rest of those training with him really makes you take a step back for what simple things can bring so much joy.
One of them learned to ride a bike for the first time and it was like he won the lottery. [Reply]
Originally Posted by Mosbonian:
I think that Scho's brother and his wife are less concerned about the money aspect and more about the personal/emotional well-being of their adult child once they have passed.
You can set up all the monetary needs that will take care of him/her, but finding a situation/group home that will provide the love and support needed is not always guaranteed.
Being the parents of a 32 y/o adult on the autism spectrum with much the same level of concerns my wife and I have grave concerns.
The problem is that there are resources available but those are maxxed out as they can be. Finding good group homes is not at all easy because they have long wait lists. And the ones that are available many times seem a bit sketchey.
Mind if I ask what state you live in? Since you mentioned waiting lists, and you are a Chiefs fan, do you live in KS or IA? Both of those states have long waiting lists for services: https://www.kff.org/medicaid/state-i...2:%22asc%22%7D [Reply]
Originally Posted by Fat Elvis:
Mind if I ask what state you live in? Since you mentioned waiting lists, and you are a Chiefs fan, do you live in KS or IA? Both of those states have long waiting lists for services: https://www.kff.org/medicaid/state-i...2:%22asc%22%7D
Thanks for asking.....
I live in Florida which actually has great resources but there is so much demand here that a great deal of patience and dedication is required.
Unfortunately not every state has good resources for families. A couple of the states we have lived in (Missouri one of them) the options were not great or very limited.
I think we have a coming crisis for the ability to handle the large numbers of Autism Spectrum Adults that are aging out. [Reply]
Originally Posted by Mosbonian:
Thanks for asking.....
I live in Florida which actually has great resources but there is so much demand here that a great deal of patience and dedication is required.
Unfortunately not every state has good resources for families. A couple of the states we have lived in (Missouri one of them) the options were not great or very limited.
I think we have a coming crisis for the ability to handle the large numbers of Autism Spectrum Adults that are aging out.
You might find the FL DD Council interesting, especially as a parent; they will have lots of resources available, and can point you in the direction of other resources in your state: https://www.fddc.org/ [Reply]
Originally Posted by Fat Elvis:
The belief that people with significant disabilities can't work being the primary contributing factor. https://apse.org/
I am not saying they can't....I am just saying not in every circumstance. I have seen cases where it is just possible. [Reply]
They keep trying jobs but the comprehension of not walking off a job, customer help or interaction, not getting distracted and disappearing and other issues have prevented him from working. [Reply]
Originally Posted by Mosbonian:
I think that Scho's brother and his wife are less concerned about the money aspect and more about the personal/emotional well-being of their adult child once they have passed.
You can set up all the monetary needs that will take care of him/her, but finding a situation/group home that will provide the love and support needed is not always guaranteed.
Being the parents of a 32 y/o adult on the autism spectrum with much the same level of concerns my wife and I have grave concerns.
The problem is that there are resources available but those are maxxed out as they can be. Finding good group homes is not at all easy because they have long wait lists. And the ones that are available many times seem a bit sketchey.
Yeah, they are concerned he will be put in a home and his two sisters will have difficulty helping take cae of him.
His sisters are both incredibly compassionate and have unlimited patience, just like my sister-in-law. [Reply]